Still on that boat…

Strawberry blonde in a dizzy world!

Ups and downs

August20

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Well things have been a bit up and down this week in so many ways. Good days followed by bad days. Lovely moments which then crash and burn. The feeling like I’m literally going up and down as if on a boat in a storm which is how I’m feeling as I’m writing this. God I hope we get to port soon!

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I went for a lovely picnic with my Father at Ivinghoe Beacon. It was beautiful, peaceful and a perfect opportunity for a good chat and a catch up. It was all going swimmingly until his suggestion that I get a caravan at the bottom of my Mothers garden to give me a bit of independence – not one of his better ideas. I was literally speechless!

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Don’t worry, if that time comes when he loses all his independence and really needs me I’ve got his place reserved at ‘ I’ve Sat in my Own Urine for Three Days but I’m Happy About it Because I’m Eating Blamange Again Nursing Home’ – what goes around comes around 😉

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Fortunately I was reminded that I have some good friends. Yes, I guessed who sent the anonymously sent Furniture and Cabinet Making magazine straight away (it’s actually more interesting than it sounds). He clearly has a direct line to my Father for a little renovation work on the caravan!

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It has also been really helpful to get support from fellow MAV sufferers – I think it really helps knowing I’m not alone in going through these ridiculous debilitating symptoms, thank you 🙂

It is so frustrating that I can do 40 lengths in the pool with no difficulty but a trip to Boots floors me for the rest of the day. This little old lady asked my for my help to find a lipstick for her and I couldn’t say no. It was really hard for me and made me feel quite ill, I bet she would feel terrible if she realised. I found it though!

Oh well, at least there is always Mary Berry (I’m not even supposed to eat this but bugger the MAV diet!)

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Still, better than my Mothers effort 😉

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4 Comments to

“Ups and downs”

  1. Avatar August 20th, 2013 at 6:16 pm Emma Says:

    Ha Reuben with the mags I guess!! Maybe a new hobby for you Sues?! X


  2. Avatar August 21st, 2013 at 2:53 pm Susan Cartwright Says:

    Ha ha yes err maybe (I can’t quite see that happening!) How are things with you Emma, hope you are really well xx


  3. Avatar August 23rd, 2013 at 7:13 am Snowy Says:

    I’m still struggling to stop looking at the things your mum is holding – are they really cakes?? Or carbon dated tree segments? You should be on the bakeoff! I guess you must be watching it!


  4. Avatar August 23rd, 2013 at 7:45 am Susan Cartwright Says:

    Oh I forgot that was back on brilliant! Cheers 🙂


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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

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