Still on that boat…

Strawberry blonde in a dizzy world!

Everything is not awesome!

February24

Well since the last post I’ve been in a total mess. My vertigo has been the worst it’s ever been, I’ve been mainly confined to bed – a trip to the wheelie bin two metres away from the back door was quite an achievement yesterday!

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I have been enrolled in a sewing course and I’m looking forward to seeing how this will turn out – I’ll keep you posted.

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My poor Mother is forever thinking up activities I can do that won’t take up to much energy to try and save my sanity – I even did a flippin jigsaw puzzle the other day! I have also been trying to brighten up my life in other ways.

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The Yoga Girls certainly cheered me up, who can’t laugh with Prosecco, Dolly Parton, Moon walking and versions of ‘Everything is Awesome’ from the Lego Movie until three in the morning – I’m sure my neighbours were thrilled!

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I have had some news though. The Hospital for Tropical Medicine wanted the opinion of a Doctor who specialises in Lyme to see what to do with me next. I was prepared to pay as this has gone on long enough but it turns out all the money in the world won’t help me as the NHS has pulled funding of his Lyme clinic so now it doesn’t exist – I know, just to make things a bit more fun! Fortunately he contacted me and after discussion with the Doctors at the Hospital feels that a trial of longterm antibiotics is worthwhile, seeing as it’s the only blood test to come back positive and the only treatment that I have responded to. So today is day one of a three month rotating course of antibiotics. This has to work – I’m seriously out of options and more importantly patience!

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5 Comments to

“Everything is not awesome!”

  1. Avatar February 27th, 2015 at 9:47 pm Tim Says:

    Really hoping this new strategy can start the well earned road to recovery. It’s been far too long but I’m still optimistic things will turn out good. Always thinking of you


  2. Avatar March 19th, 2015 at 9:42 pm Susan Cartwright Says:

    Thanks Tim, just had a good week which coincided with being on the antibiotics for a couple of weeks. Just hoping it’s not a coincidence but that’s four times that’s happened now…dare I even hope? Xx


  3. Avatar March 16th, 2015 at 10:42 am Jan (A gluttonous wife) Says:

    I’m crossing all my bits for you 🙂 xxxx Jan x


  4. Avatar March 19th, 2015 at 9:42 pm Susan Cartwright Says:

    Thanks so much Jan xx


  5. Avatar March 23rd, 2015 at 7:48 am Snowy Says:

    Desperately hoping this is the solution sues! Keeping fingers and toes crossed.


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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat