Still on that boat…

Strawberry blonde in a dizzy world!

Iffy

July22

Well after the last post I quite literally fell on my ass! I was rather a fool to think things were going to be that easy. Things have been very up and down.

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I went to see a GP in Sussex who has a special interest in Chronic Lyme Disease which was really interesting. We appear to be very limited for doctors in this country that actually treat or even believe Chronic Lyme exists. He was really nice and although he can’t be 100% sure, thought it was ‘pretty likely’ (got to love the certainty of modern medicine!) I had Lyme disease. He works alongside a herbologist and they both felt my immune system was pretty rubbish after all those antibiotics and I needed an six week mixture of herbs to boost it. Yes, I was rather sceptical but if it’s the only option you have you just give it a go. I was rather more cynical when during this course I came down with every ailment known to man. I persisted, even with the Lyme tea – and no, I didn’t get the munchies after!

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Alongside this the Professor at the Hospital of Tropical Medicine has pretty much held his hands up and said he has no clue what’s really wrong with me and has referred me to his colleague who is a Neurologist. He seems to feel we need to go right back to the start and look at it with fresh eyes. I can see his point, and I really appreciate him for trying but I’m so tired of all this.

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Anyway, I’ve since been back to the Lyme GP and he has now started me on a six week course of multiple antibiotics. My Dad reassured me that there were cheaper options should I so choose (that’s Beachy Head in the background).

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I started them a couple of days ago and feel pretty awful. I can’t even have a drink or sit in the garden as they can cause skin hyperpigmentation, and we all know if anyone is going to have a reaction it will be me. Fortunately it ties in quite well for Sardinia which is in six weeks time. That glass of Prosecco in the sunshine with good friends will be all the more enjoyable! For now, it will be back to back episodes of Orange is the New Black to keep me from losing my marbles 😉

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3 Comments to

“Iffy”

  1. Avatar July 30th, 2015 at 6:43 pm Emma Says:

    Hi Sues, nice to see you’re back on your blog! That tea certainly looks ahem ‘interesting’… Good luck with the new neurologist and medications xx
  2. Avatar July 31st, 2015 at 6:10 pm Susan Cartwright Says:

    Thanks Emma xx
  3. Avatar August 6th, 2015 at 6:55 am Snowy Says:

    Fingers crossed for the new stuff. We are watching orange is the new black too!

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat