Day 22

November10

Three weeks done so it should all be downhill from here, in theory. Last night my insomnia was terrible again, I awoke at silly o clock jittery and soaked through. My fridge is bare so I couldn’t even distract myself with baking – I’m sure my neighbours were relieved though!

I wasn’t sure if I should go to yoga as I was in bed for three days after last week. I couldn’t sit around feeling so tired and wired so I risked it and I’m glad I did as I think I feel better for it. I rested all afternoon, it will be interesting to see what tomorrow brings – will I be upright or not?

posted under Uncategorized

My advice for surviving benzodiazepine withdrawal
7:25 pm , September 22 , 2021

Acute withdrawal hell
7:35 pm , August 25 , 2021

Simply winging it with the help of Google – because that’s never a recipe for disaster!
4:25 pm , August 18 , 2021

Getting the ‘right’ help – part two
4:16 pm , July 21 , 2021

Getting the right help with benzodiazepine withdrawal…or so I thought
2:36 pm , March 12 , 2021

When the benzodiazepine withdrawal s**t storm hit
4:44 pm , March 5 , 2021

So, where were we?
5:05 pm , May 22 , 2020

Toxic mould – scary or what?
10:32 pm , July 17 , 2019

What on earth is Adrenal Fatigue?
4:53 pm , July 3 , 2019

Is this the winning combination?
4:24 pm , June 11 , 2019

Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

@still_on_that_boat

Still on that boat…

Day 22