Well the appointment was not all that positive unfortunately. The Specialist admitted that he would have expected to see some improvement by now and his options are limited. He doesn’t feel my body can handle any more antibiotics at the moment so has given me some more herbal remedies called Byron White formulas. I wasn’t exactly thrilled but it was better than nothing and I don’t exactly have a lot of other options!

He pretty much confirmed that if these don’t work (and lets face it I feel it’s pretty unlikely!) I need to look at going abroad for more intensive treatment, but no suggestions as to where. We are rather limited here, what with half the profession denying the illness even exists not really helping the matter. I had a conversation with a Professor who readily admits that I have a pathogen of some sort causing my symptoms (he treated me for Lyme) but feels that the antibiotics I’ve had already would have treated ANY pathogen so now I have a ‘Post Illness Syndrome’. He feels that my best shot is neuro rehab despite the best neuro rehab in the country saying it would be futile as she has worked with me for years and seen no positive effect. Where exactly does that leave me!?! The words ‘creek’ ‘shit’ and ‘paddle’ spring to mind!

So now I’m looking into treatment abroad. The big barrier being money, sitting on your ass all day doesn’t exactly pay well 😉 Neither specialist has any suggestions of where to go so I’m literally Googling ‘Lyme treatment’ and stalking forums. You never know old Byron’s concoctions may even do the trick!