Still on that boat…

Strawberry blonde in a dizzy world!

America here I come!

March28

Happy Easter 🙂

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Well, the last few months have been a disaster. I have been gradually building up on the herbal formulas and feeling worse and worse. My Specialist has now run out of them so I can’t continue treatment – what a massive waste of time! Although I’m furious that my treatment has stopped due to poor organisation (awaiting a delivery from the US) part of me is pretty relived. Spending day after day too ill to get up is very hard going, especially when you don’t know if its even of any benefit in the long run. I’ve been off them ten days now and things are starting to settle down.

I have been spending a lot of time researching treatment abroad as I can see that I have exhausted all options available in the UK. I have actually booked an appointment with a clinic in Washington DC. The clinic has had some good results, no promises of a cure (of course!) but it appears that they get some improvement of symptoms in most cases. They take on more complicated patients who have had Lyme for a number of years and have not responded to any treatment – sounds like a familiar story!?!

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The only thing I had with an American flag on – typical me! So I’m all booked to go with my Dad in May, I have to hope that it is the right choice. It’s a pretty daunting decision when you don’t know if it is the right thing to do but it does feel good to have a plan of action, sitting around deteriorating is not an option! It’s almost as exciting as my tomato plants 😉

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2 Comments to

“America here I come!”

  1. Avatar March 28th, 2016 at 8:52 pm Marcus Says:

    That’s awesome Sues. I know you have had a shocker of late, so the idea of finding a completely new avenue to explore is superb and hopefully will be that final step…. Plus get to go to DC which will be a great trip as well.


  2. Avatar April 8th, 2016 at 3:23 am Emma Says:

    Wow that’s exciting! Good luck with the trip and fingers crossed for you X


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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat