Still on that boat…

Strawberry blonde in a dizzy world!

Another countdown

April23

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Normally I only count down to a holiday or time done on horrible medication but now I’m counting down to my appointment in the States. It has felt like such a long time but now it’s in a weeks time I can feel the panic set in. I even had a dream (more like a nightmare!) where I went to the appointment and he told me there was nothing wrong with me and to just man up and get on with it. It would be funny if I hadn’t actually happened to me in real life a couple of times!

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So I have been trying to relax doing a bit of gardening (I clearly didn’t dig all that thanks Michael!) and growing some veggies – they just about survived the storm!

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Thinking this as therapy may be more successful, and if not there is always vodka…maybe vodka whilst colouring!?!

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Shitttttt scary sums it up quite nicely 😉

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One Comment to

“Another countdown”

  1. Avatar May 3rd, 2016 at 11:06 pm Snowy Says:

    So so so so so hoping it helps and completely keeping my fingers crossed for you big hugs.

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat