Still on that boat…

Strawberry blonde in a dizzy world!

Things I must be reminded of when it gets rocky!

June14

 

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Still loving America as I’ve been doing really well on the pre-treatment protocol which has been a lot of drugs to try and calm my mental brain down.  I took advantage of this good patch to go on a proper holiday (Washington was just an ordeal!) before I start the more gruelling antibiotic regime – I’ve had to make a spread sheet just to stay on top of things.

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It was great to go away and feel so much better. Admittedly the weather for the first few days was rubbish. It was so grim the pool bar had a log burner going for the first three days. We were wearing our warm ‘England clothes’ that we travelled in for days trying to keep warm! Still managed to have fun though.

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Things brightened up and I even took a bus without being totally terrified for the first time in 6 years! That sounds like such a simple thing to do but I’d previously worry about an ‘episode’ or how far I’d have to walk the other end, passing out etc etc etc – quite valid reasons to be concerned!

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After a few practice runs of walking to the beach I managed to get up really early in the morning and walk to the beach and do my yoga practice on a beautiful empty beach – it was amazing!

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I also went to a stunning  church, I’m not religious but I was really drawn to it. I lit a candle and made a wish that everyone that I care about live a happy and healthy life.

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On my return I didn’t crash like usual. I even managed to walk across the fields to a local pub. Something I’ve always wanted to do and used to sit and cry about with my mum as I thought I’d never would again. So simple but a massive deal to me. I can’t tell you the relief I felt when I actually got there – I sat and had a big cry and a big drink!

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Just hope the antibiotic protocol doesn’t rock the boat too much (excuse the pun). I’m expecting a set back but hey, at least I know I can do these things, my brain isn’t damaged beyond repair. I just have to remember what I have managed in the three weeks prior to the antibiotics and not get too disheartened if things deteriorate 🙂

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Cheers – no more drink for me for a while!

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3 Comments to

“Things I must be reminded of when it gets rocky!”

  1. Avatar July 22nd, 2016 at 9:11 pm Emma Says:

    How are you getting on now Sues? Hope all going well X
  2. Avatar September 2nd, 2016 at 5:31 pm Susan Cartwright Says:

    Sorry Emma been so up and down wanted to wait for a middling mood before I wrote a new entry! I hope that you are well? sues xx
  3. Avatar September 3rd, 2016 at 6:07 am Emma Says:

    All good here thanks. Still feeling better? There’s so much in the media about Lyme’s recently! More people talking about it has got to be a good thing hopefully X

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

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