Still on that boat…

Strawberry blonde in a dizzy world!

Rollercoaster or what!?!

September5

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Sorry for the comms down. Things have been all over the place with both my physical and emotional health (I have been a bit cray cray) and I wanted to give a true reflection of how things have been. My sister (who lives in Australia) got married and the pre wedding stress, the actual wedding stress, and post wedding stress was immence and would have sent a fit and healthy person over the edge – I actually coped quite well, I guess being in a drug fulled state has its benefits 😉

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I had been doing so amazingly well with my walking, even climbing Ivanhoe Beacon, this has been seen as pretty much mount Everest to me for the past six years! Yes I had to have a little rest at the top huffing and puffing but I was so happy to manage it – A-MAY-ZING!

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It’s bigger than it looks honest!

But I have started a new protocol and very much like my much cared for sunflowers I have deteriorated big time – apparently this is a good thing, I’m not convinced myself but it is hard to be objective I guess.

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So, the last three weeks have been vom-tastic. I did manage a weekend with the yoga girls which was a well needed break and an absolute hoot!

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Yes resisting the chocolate fondant was a challenge, the Paleo diet is SO mean!

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But I found something else that I could get involved in…

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So Michael and I got well excited making distilled water for the next phase of my treatment – my kitchen looked like something out of breaking Bad:

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But unfortunately it has meant a return of all my symptoms that I thought I had got rid of – words can not describe how gutted I feel (well perhaps a few but not very lady like ones!). Anyway talking to the “People in the Know” this is really common and I have to sit it out during this period of treatment. So that’s ok – until I found out I have to now do another nine weeks of this, there are only so many box sets a girl can take!

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So, I’m just taking each day as it comes (generally on the sofa/bed trying to keep the meds down) and hope that this is worth it in the long run. It’s scary because I have been here before so many times, suffering so much with only more negative results. I just have trust that because I have had some relief for the first time in years that these guys know what they are doing…eek!

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2 Comments to

“Rollercoaster or what!?!”

  1. Avatar September 6th, 2016 at 4:01 pm snowy Says:

    Hang in there sues! You look amazing in the wedding photo!


  2. Avatar September 16th, 2016 at 9:47 am Susan Cartwright Says:

    Thanks mate but I think the grimace says it all 😉


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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat