Still on that boat…

Strawberry blonde in a dizzy world!

Trapped

January20

dizziness[2]

What an optimistic fool I am. After posting the previous entry my mum picked me up in her car to go to her house for a change of scene. I felt like the house was tipping as soon as I had got in the door and I hung on to the dresser for dear life. Even with my Mum and her partner next to me I still collapsed. It’s like my body totally gives up and I have absolutely no control over it. I then spent ages on the floor (with Molly the dog) letting the rocking sensation calm down, hanging onto the floor for dear life. It took me about an hour and a half to get from the floor to sitting to crawling onto the sofa.

prison-01[1]

So, even after managing to tick off pretty much everything on my detox list yesterday (and I do most days) my brain still isn’t happy. I am totally gutted, I feel like a prisoner in my own home. I have been crawling around on my hands and knees with my phone glued to my side as it could happen to me at any time. I’ve had a few times when I thought I was going to have an ‘episode’ today but so far so good. It’s so scary as it’s so unpredictable, you don’t exactly want to be on the floor of Tescos unable to get up. It would be terrible – being passed out on the floor next to the doughnuts for two hours on my diet!

IMG_0432

So, I’m not really in the mood for TV so the DVD is still safe and awaiting me on the floor which could be anytime soon 🙁

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2 Comments to

“Trapped”

  1. Avatar January 21st, 2017 at 5:16 pm Amanda Says:

    Hi there
    Just found your blog. Do you have a new diagnosis of lymes – Id always suspected this but have been told mav. Finding it really difficult and it’s rendered me pathetic emotionally.
    Where are you based? I’m in the UK in Kent, was wondering if you had a London spealist.
    Any info would be gravely appreciated.

    Thanks

    Amanda
  2. Avatar January 22nd, 2017 at 12:39 pm Susan Cartwright Says:

    Hiya, thanks for getting in touch. I was never convinced of my diagnosis of mav as I never found any improvement with treatment. I went to my GP who tested me and I came back with a positive blood test but this test is not 100% accurate. I then went to the London School of Tropical Medicine but I found that they were very much on the fence about chronic Lyme but did offer me treatment. There is a really good group on Facebook called ‘Lyme disease uk discussion group’. They have compiled a document that lists all of the options that are available With really helpful patient reviews. I understand how hard it is with a chronic illness and I really hope that this has helped you. You take care 🙂

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

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