Still on that boat…

Strawberry blonde in a dizzy world!

The Welsh CTF work out

October13

Well, courtesy of my ‘fairy’ step mother and her lovely husband I am now on a new journey and it’s exciting. The treatment is VERY different but lets face it, the conventional treatment has got me no where, well, just much worse than when I started. The vertigo and fatigue has been so so bad. The boat is just about settling down but only when I’m really well rested and not moving much. I had one of my ‘episodes’ when I tried to leave the house and a day where I was hanging onto my bed for dear life as the rocking was so bad I was trying not to be sick. Not fun!

It’s a twelve week course (not quite sure what to do when my visa runs out) and I started this week. It wasn’t the best of starts when the doctor running the clinic seemed a bit barmy. We now all refer to him as Dr Nutty. It seems like that was an unfair first impression he’s just a doctor with zero people skills, has no regard for patient confidentiality and doesn’t like to be asked questions. Sounds terrible I know but I’ve tried all the other kinds of doctors and that’s not worked for me. I don’t need someone to hold my hand I need someone to get me better. Time for a 180!

Please, please let this work:

I can assure you that is not a smile:

To prepare for my upcoming fun and games Andrew has started me on a ‘light’ Lyme exercise regime. He has researched the matter and found that one day of light resistance exercised and the next day of absolute rest is the way to go. Light ha! It’s called the ‘Cut To F**k Workout’ (patent pending and not my name for it!). Damian the Pilates instructor just about killed me. ‘Light’ my arse. I could hardly lift up my arms the next day. I knew I was in trouble when I woke up and had difficulties brushing my teeth. Don’t ask me what it was like trying to take my jumper off at the end of the day – almost had to sleep in the bloody thing!



It’s been really fun though and I clearly needed it. The exercise should get the lymphatic system flowing and allow it to get rid of all the nasty bugs and break down products that are in my body. So, a new chapter in my Lyme journey. Here goes nothing, well if my body can still get me to the clinic that is 😉

 

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2 Comments to

“The Welsh CTF work out”

  1. Avatar October 13th, 2018 at 3:34 pm Emma Says:

    Looks hardcore! Good luck with the new approach. I look forward to the updates! X
  2. Avatar October 13th, 2018 at 3:49 pm Susan Cartwright Says:

    Thanks Emma. It will either kill me or help – only time will tell. I’m just so unconditioned I get out of breath even walking up the stairs. So even if I did get better I’d struggle. It’s very hard to get the balance right. Too much exercise puts me in bed for days so it’s tricky. xx

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat