Still on that boat…

Strawberry blonde in a dizzy world!

So, where were we?

May22

My oh my how time flies by. I can’t believe how long it’s been since my last post but I have some pretty good excuses and a lot of stories and great information that I can’t wait to share.

I was in America having treatment for Lyme, co-infections, adrenal fatigue, hypothyroid and mould toxicity. So just a few things. I was doing quite well and then crashed and we had no idea why. We had the house that I was staying in retested for mould and it turned out that there was mould in the air conditioning. Not ideal! So, this was promptly fixed and the epic task of de moulding all my clothes and furnishings was once again completed. I restarted the mould treatment which then made my symptoms flare up. However, because I had felt so much better after I was previously treated for mould toxicity I knew this would pass. I was excited to see what my health would be like after the treatment.

I was in bed a lot, had more vertigo and dizziness but I was managing to get out and do some things. I would go for a yoga class in the park or a Wim Hoff session (this is an awesome method that deserves its own entry!) and I’d be really happy. I even went out for dinner a couple of times and was starting to develop a social life and make some really good friends. I totally fell in love with my yoga buddies and the quinoa pancakes at my Sunday brunch yoga class. I threw myself into the world of sharing circles, singing bowels, Acroyoga and even a yoga silent disco. I was officially more of a hippy than when I had started!

Then disaster struck and I realised that my visa was running out (bloody paperwork!) and I had to leave pronto if I wanted to return to the USA again. I was devastated as I was pretty positive that the treatment was working, and I didn’t want to stop. I knew I’d really miss Mary and Andrew, my lovely friends and all the fun activities that I could join in with. It made life so much easier (and fun) having things that I could manage right on my doorstop. If I became too ill it was only a couple of minutes in an Uber to get home to the safely of my bed. That gave me a lot of confidence to try things that I wouldn’t necessarily have tried before.

I’m so grateful for Mary and Andrew giving me this opportunity to try all these new things that were available to me. They always encouraged me to try more and more. I could spend a day in bed, come down in the evening to announce that I was trying a hot yoga class in an hours’ time and they wouldn’t bat an eyelid. They never made me fearful to try things that on paper were potentially not a good idea for someone with my symptoms to try. Always cheering me on when I came home after a successful trip out. I can safely say that Mary and Andrew are the most fun people I’ve ever lived with.

Clearly, if I wanted to partake in an activity I would have to rest before and be aware that I would sacrifice time after to recover but I’ve played this game long enough to make my peace with this way of life. Although, I’d be totally lying if I said it doesn’t still really piss me off or confess to actually mastering this concept! Sometimes this worked, sometimes it didn’t but hey, at least I put myself out there and tried which is not easy when you are so restricted and can pass out at any time.

Although I was keen to see my family, the thought of going back to my lonely village in the UK with not a yoga lesson (or ray of sunshine!) in sight was a seriously depressing. It turned out that the universe forcing me to go home was the best possible outcome for me as the mother of all shit storms was heading my way…

Every cloud has a silver lining after all.

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

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