Serious post holiday blues!
Well you have probably realised things haven’t been exactly great from my lack of blog entries. I had an absolutely brilliant yoga holiday in Sardinia. The yoga was fantastic on a sun deck down by the sea with wonderful teachers. The food (and wine!) was great I’ve never eaten so much in all my life (clearly because I did so much exercise I really needed it!) . More importantly the company was exceptional I haven’t laughed so much in far too long. I managed my symptoms really well and felt like my old self again.
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I really thought I had this awful illness sussed if I did small activities with lots of rest. I even considered that, maybe, what I needed was just to have more fun as, lets face it, I’ve not had a lot of that of late. Unfortunately I had that all very wrong as I completely crashed and burned on my return – it has been heart-breaking. I have hardly been out of bed in weeks I have been so ill. I have seen a new Neurologist who seemed pretty confident that he could help given time (yes more of that!). He has changed my drugs and to be honest the last 5 weeks have been horrendous. Coming off one of my drugs has been like I’ve had the ‘Worst Hangover Ever’ on top of my usual fun and games. Sadly, I’ve not had the pleasure of drinking three bottles of red per night – perhaps that should be my next plan of action!
So here’s hoping that my new Neurologist’s plan works. He actually uses Botox with quite good success in some patients so I’m going to give it a go. I’m really hoping it will have a positive effect on my symptoms. I can’t get too excited as I’ve been disappointed too many times with failed treatment plans. On the positive side a bit of Botox makes me wonder if I will start getting ID’d again!
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My next appointment (when I have the Botox) is not for a couple of months so it gives me a chance to get over my bad patch and start the newly prescribed drugs (joy!). In the interim I’ll just have to stick to my friend Karl’s suggested therapy of ‘One Person Helps You Stand On Your Head Whilst The Other Spanks You’. You never know it could catch on! 😉
Glad you had a great time in Sardinia – so sorry it’s been pants ever since! People would pay good money to be the woman in white in the last photo…!
Hi Sues
Glad you had a nice holiday but sorry it was downhill afterwards! I read that this can happen with migraine. Like a post letdown phase. I just wondered who your new neurologist is and what your new meds are? Feel free to email me at the above address if you would prefer xxx
Hiya Jemma how are things with you?
I’m now seeing Dr Silver. I know it’s best not to chop and change doctors but I wasn’t really getting anywhere and it’s been such a long time. I’ve now started bisoprolol and reduced my dose of pregabalin which has been tough so let’s hope it’s worth it!
You take care,
Sues xx
Hi Sues
I have had a rough few months, tried and gave up Gabapentin then Topamax. Both make me so tired I feel like I am better off just sticking to Nortriptyline. I speak to Dr S in a couple of weeks so will see what he thinks. I saw Dr Silver last year but then I went to Dr S for a second opinion and am now under him on the NHS. I have never heard of bisoprolol before, is it a beta blocker? Have you tried most of the standard migraine meds already?
xxx
Hey Sues
I did post a reply before but it seemed to disappear. I did see Dr Silver but then saw Dr S for a second opinion and am now under him on the NHS. I have never heard of bisoprolol – is it a beta blocker?
How many meds have you tried so far?
Jemma x
Hiya Jemma I think that was probably my fault – honestly I swear I’m turning into my mother technology wise! I’ll email you to save boring everyone with my very long list of meds 😉