“Tip top table tastic!”
Who am I?
Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.
Now – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!
I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.
A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!
Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉
@still_on_that_boat
Another accomplishment to add to the collection Sues. You should seriously start up an eBay shop! Xx
Agree with Emma! There is money to be made here!
Sweet job you have done there Miss Upcycle
Keep up the good work repairing/re-using/recycling is v much my thing as you know.
I do hope the move to your new place goes well and you have many happy days there.
Gwyn and I are still thinking of you and wishing we could come up with something – or some expert person – that lead finally to a breakthrough for you.
All our love
John and Gwyn
Hi, it’s so lovely to hear from you how are things? I’m glad you like my reviving old furniture it’s really fun. I think it’s good to have a project that doesn’t involve too much moving! I’m really enjoying having my own place, it’s much more hard work but it’s good for me to try and get some independence back and try and live a more normal life – well as far as this stupid illness allows! I really appreciate you thinking of me and all that you have done for me. You are always welcome for a cup of tea here – on my £30 charity shop kitchen table that I am currently doing up!
Love Sues