Still on that boat…

Strawberry blonde in a dizzy world!

I don’t want to jinx this but…

April13

I’m now on the third week of the second lot of antibiotics (if that makes sense, I’ve done six weeks of antibiotics in total) and dare I say it, I’m doing quite well. Now the nausea is settling down the vertigo has been so much better, and I’d take nausea over vertigo any day!

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I’ve had blood taken at The Hospital of Tropical Medicine that has come back positive for Anaplasma Phagocytophilium (yup, I had to Google that one!). It’s a co-infection, spread by tics and is commonly passed on at the same time as Lyme disease. I’m not entirely sure what this means for me, apart from its looking like the Lyme diagnosis is more and more likely. Oh and that tic was one nasty little so-and-so!

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I had a lovely visit from Soph where we turned my kitchen pretty much into a sweat shop making dresses.

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I have finally finished my 60’s dress and I can’t wait to wear it.

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I have managed to do lots more. Including going to the cinema which is something I’ve not done for a lot of years, and if I’m being honest I was pretty scared to do. I was so happy that I managed it without incident or paying for it after. Although, in hindsight seeing ‘Still Alice’, a film about a bright woman whose life tragically changed after illness was perhaps not the most sensible of choices – a bit too close to home!

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I even managed to go for a walk the other morning and felt fine, well apart from looking like a loon grinning and taking pictures of where I’d manage to walk of course!

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Today, I even managed John Lewis with absolutely no vertigo at all. I feel really happy (I’m not sure my credit card is quite so thrilled) although a little shattered after, but I think even 100% fighting fit people feel done in after a visit to Milton Keynes!

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God I hope this lasts!

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6 Comments to

“I don’t want to jinx this but…”

  1. Avatar April 14th, 2015 at 1:54 pm Jan (A gluttonous wife) Says:

    This makes me SO happy to read this Suse!!!!!!!!! I’ve been doing really well too…maybe this is our year baby 🙂 xxxx


  2. Avatar April 14th, 2015 at 10:20 pm Susan Cartwright Says:

    Yay that’s so great that you’re doing well too, we so deserve this! Xx


  3. Avatar April 15th, 2015 at 10:05 pm Snowy Says:

    So excited about this for you Sues. Really keeping my fingers crossed now!!!


  4. Avatar April 16th, 2015 at 8:18 am Susan Cartwright Says:

    Thanks mate, really hope this time works xx


  5. Avatar April 19th, 2015 at 9:14 pm Tim and Jo Says:

    Really great to read this Sues. Hoping and praying it continues! X


  6. Avatar April 20th, 2015 at 7:53 pm Susan Cartwright Says:

    Cheers guys xx


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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat