Still on that boat…

Strawberry blonde in a dizzy world!

I don’t want to jinx this but…

April13

I’m now on the third week of the second lot of antibiotics (if that makes sense, I’ve done six weeks of antibiotics in total) and dare I say it, I’m doing quite well. Now the nausea is settling down the vertigo has been so much better, and I’d take nausea over vertigo any day!

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I’ve had blood taken at The Hospital of Tropical Medicine that has come back positive for Anaplasma Phagocytophilium (yup, I had to Google that one!). It’s a co-infection, spread by tics and is commonly passed on at the same time as Lyme disease. I’m not entirely sure what this means for me, apart from its looking like the Lyme diagnosis is more and more likely. Oh and that tic was one nasty little so-and-so!

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I had a lovely visit from Soph where we turned my kitchen pretty much into a sweat shop making dresses.

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I have finally finished my 60’s dress and I can’t wait to wear it.

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I have managed to do lots more. Including going to the cinema which is something I’ve not done for a lot of years, and if I’m being honest I was pretty scared to do. I was so happy that I managed it without incident or paying for it after. Although, in hindsight seeing ‘Still Alice’, a film about a bright woman whose life tragically changed after illness was perhaps not the most sensible of choices – a bit too close to home!

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I even managed to go for a walk the other morning and felt fine, well apart from looking like a loon grinning and taking pictures of where I’d manage to walk of course!

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Today, I even managed John Lewis with absolutely no vertigo at all. I feel really happy (I’m not sure my credit card is quite so thrilled) although a little shattered after, but I think even 100% fighting fit people feel done in after a visit to Milton Keynes!

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God I hope this lasts!

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6 Comments to

“I don’t want to jinx this but…”

  1. Avatar April 14th, 2015 at 1:54 pm Jan (A gluttonous wife) Says:

    This makes me SO happy to read this Suse!!!!!!!!! I’ve been doing really well too…maybe this is our year baby 🙂 xxxx
  2. Avatar April 14th, 2015 at 10:20 pm Susan Cartwright Says:

    Yay that’s so great that you’re doing well too, we so deserve this! Xx
  3. Avatar April 15th, 2015 at 10:05 pm Snowy Says:

    So excited about this for you Sues. Really keeping my fingers crossed now!!!
  4. Avatar April 16th, 2015 at 8:18 am Susan Cartwright Says:

    Thanks mate, really hope this time works xx
  5. Avatar April 19th, 2015 at 9:14 pm Tim and Jo Says:

    Really great to read this Sues. Hoping and praying it continues! X
  6. Avatar April 20th, 2015 at 7:53 pm Susan Cartwright Says:

    Cheers guys xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat