Still on that boat…

Strawberry blonde in a dizzy world!

Day 11

October30

Still feeling pretty awful. My specialist has advised having a massage once a fortnight to aid my lymphatic system getting rid of the toxins caused by the antibiotics hitting the bugs. I don’t like it as I’ve never been one for massage and it generally makes me feel grotty the next day. It’s not exactly white fluffy dressing gowns and Prosecco unfortunately. I had to bite the bullet today, anyway, I feel so rubbish I probably wont even notice it.

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My mother had to drive me as it is not easy to park at the surgery and I’m rather limited in how far I can walk before catastrophe. I thought things couldn’t get worse with her first CD choice:

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I was so wrong!

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You have to laugh, some days I cant even get far enough to my car to drive it but I don’t qualify for a disabled badge. I don’t really want one, it’s a pride thing, I don’t see myself as disabled, (rather stupidly) still looking at this as slight blip in my health. The ironic thing being if I could actually use a wheelchair I’d be much better off as at least I’d be able to go somewhere once I’d got there. Unfortunately, the motion of the wheelchair leaves me in a total mess after. So as it stands my mobility issues of blacking out after a few metres are not considered disabling and parents’ with children are even ahead of me in the pecking order for parking spaces. I can appreciate the difficulty of having pushchairs but I’d argue they are still rather more mobile than me!

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So today has once more been spent on the sofa. Roll on tomorrow 🙂

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One Comment to

“Day 11”

  1. Avatar October 30th, 2015 at 10:42 pm Woody Says:

    What wonderful taste in music – a true connoisseur – the ‘Cowboy Song’ is highly recommended…

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat