Still on that boat…

Strawberry blonde in a dizzy world!

Day 24

November13

I didn’t sleep well last night so I felt rubbish before I even got out of bed which isn’t a great start. I was really jittery and an emotional wreck, I realised action was required when I was reduced to a blubbering mess after the John Lewis Advert. I went to HobbyCraft as crafts can take my mind off things and I’ve not done anything for ages. I can’t explain how awful it is feeling so tired but being unable to sit still. I used to think I knew what it was like to feel anxious but I realise now I had no real clue. My vertigo wasn’t actually too bad but I still felt really terrible I may actually be finally losing my marbles.

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So, I transforemed this:

20151113_180131

 

into this:

20151113_180152

 

Hmmmm do you think that there is something on my mind?

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2 Comments to

“Day 24”

  1. Avatar November 15th, 2015 at 6:05 pm Snowy Says:

    Looks cool – very Kath kidson 🙂
  2. Avatar November 17th, 2015 at 5:07 pm Susan Cartwright Says:

    Ha ha thanks 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat