Still on that boat…

Strawberry blonde in a dizzy world!

Day 25

November16

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Day 25 will now be known as official melt down day. I went to the surgery for blood tests and an ECG as I’m on so many ‘fun drugs’ I need to be monitored. I had to go to another surgery to have the ECG to be told by a dragon of a receptionist that they couldn’t do it even though I’ve been booked in for weeks. I didn’t even get an apology. Where do they get these people, they sit on a desk in a doctors reception and they feel they have absorbed all those years of medical knowledge by just being in the same flippin building?!? She had absolutely no clue what she was talking about and was about as empathetic as a wet tea towel. Being told I should just pop to A&E if I think I really need it but I’ll be waiting a long time pushed me right over the edge – I cant pop anywhere!

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So I had a melt down. It wasn’t so much her pretending to know what she was talking about, it was the clear lack of understanding that it had taken so much effort for me to get there. I have to say the nurse was really great, she said she could completely see my frustration and could have quite happily of joined in with me. Anyway, needless to say I spent the remainder of the day on the sofa.

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat