Still on that boat…

Strawberry blonde in a dizzy world!

Day number…just another rubbish one!

December17

Well unfortunately I’ve not exactly been base jumping down to my local shop to buy my pint of milk as I was hoping! I can’t believe how after all these years I’m still foolish enough to get my hopes up that something will actually work. I think I just need to give up and be put out of my misery!

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My eyes still haven’t recovered from the patch and I got the mother of all migraines that lasted for four days once I removed the flippin thing, not fun at all! I’ve had a couple of days where I have left the house or done something fun but the pay back almost doesn’t make it worth the while. I had a lovely time with the yoga girls followed by a very drunken afternoon of jazz in the local pub – two glasses of wine and I loved EVERYBODY!

 

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I had some great Christmas drinks with some friends at the weekend, still laughing at a mate squeezing into my Christmas elf jumper – annoyingly it looked better much on him than me! I had another bad day today and I’m feeling Pretty low.

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I’ve tried dietary ‘stuff’ before (gluten free, dairy free, chocolate free, citrus free, caffeine free – well just everything nice free!) and it has made no absolutely no difference to my symptoms. In my desperation I think I will have to give it another go, I’m running out of options and I categorically can’t live like this. I’m going to give myself a couple of weeks over Christmas so that I can enjoy a mulled wine or two. Starting in January I’m cutting out anything Lyme friendly (and writing it on here so that I actually tick to it!). Thinking I’m going to need a lot of willpower…oh and a massive mulled wine right now to make up for being alcohol free once more!

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2 Comments to

“Day number…just another rubbish one!”

  1. Avatar December 21st, 2015 at 8:26 pm Snowy Says:

    Mulled wine!! Go for it!
  2. Avatar December 21st, 2015 at 9:53 pm Susan Cartwright Says:

    Well why not 😉

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat