Still on that boat…

Strawberry blonde in a dizzy world!

Don’t get sad get mad!

December21

Bugger waiting until January, if I have these bugs in my blood I’m going to starve them out right now! I have had no carbs, no caffeine, no dairy and no sugar today. I’m following an Autoimmune Paleo diet which I’ve modified (I don’t want to lose more weight). I do realise I probably can’t keep todays enthusiasm up, and no doubt I’ll be selling my granny for a piece of dairy milk by next week but its a positive start. Unfortunately I spent so much money on recipe books on Amazon that I now can’t actually afford the ingredients to create them but live and learn 😉

20151219_133400

I had gluten free porridge with berries for breakfast, tuna steak on a big green salad for lunch and chicken with roasted cauliflower for tea.

I think what really helped is my Yoga teacher advised me to take Tumeric tea. Tumeric is an natural inflammatory and seems to be the ‘in herb’ right now. I made the tea this afternoon whilst chanting ‘please don’t be rank, please don’t be rank, please don’t be rank’ and guess what? it was bloody awful, but on the plus side I have felt so sick ever since I’ve not had any cravings what so ever 🙂

20151219_144130

I’ve also got back into my juicing, much nicer than Tumeric tea but not quite a mulled wine!

20151219_192319

posted under Uncategorized
4 Comments to

“Don’t get sad get mad!”

  1. Avatar December 26th, 2015 at 7:52 pm Emma Says:

    Hope this wasn’t your Christmas dinner? Have you seen the article that Marcus shared on Facebook about Lyme’s? Interesting reading.
  2. Avatar January 18th, 2016 at 4:13 pm Susan Cartwright Says:

    Yes it was, unfortunately far to many stories just like it including my own 🙁
  3. Avatar December 27th, 2015 at 7:32 am HHobbers Says:

    Hey Sues,
    I didn’t know you had been writing a blog until your mum mentioned it yesterday. It’s a great idea. I often wonder how you are getting on and now I can keep up to date. I’ve got everything crossed that you are now seeing the right consultants and have the right diagnosis and that sometime soon you will find a management plan that works…or even better a treatment that can cure this big bad bugger. Hope you had a good Christmas – sorry we didn’t get to see you yesterday. Please if you ever need anything from Berko or need some company, please give me a shout. Sending lots of love Hayley. Xxx
  4. Avatar January 18th, 2016 at 4:15 pm Susan Cartwright Says:

    Thanks so much Hayley that’s really kind! Had a bit of a blip but hoping to pick up again xx

Email will not be published

Website example

Your Comment:

Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat