Still on that boat…

Strawberry blonde in a dizzy world!

I don’t know, did I?

September16

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I was doing really well until my head got filled with porridge and cotton wool resulting in a total car crash of a mess. I’m going to list some of the things that I actually remember doing. Warning this could make you laugh or just make you want to send round a responsible adult to supervise:

  • Signed a leaving card but forgot how to spell my name so had to bodge it.
  • Put a baking tray on top of gluten free pizza – have had to ditch Paleo (diet not some Spanish lover) for a bit as I’m struggling to keep any drugs down without it. Yes I have pizza every other day!
  • Tried to put baking tray in fridge – probably pizza related
  • Left cooker on (I think after cooking a pizza – I guess it’s a good chance lets face it!)
  • Got left over bolognese (whoop whoop not pizza!) portion out of the fridge and put it in the microwave and waited thinking it was taking a long time – wasn’t in the microwave it was in the fridge.
  • Could not work out simple math (I have a spreadsheet) to tell my doctor how many tablets I needed – I have two degrees!
  • Felt a bit better so thought I’d try a yoga class at my local gym – got there an hour early.
  • Got things ready for a nice cuppa – yup salt and pepper probably not to useful.
  • Put a very expensive decafinated Twinings tea bag into my already made decaf coffee – trust me Tecoffee will never catch on.
  • Can’t win any arguments with my boyfriend (this is a right bummer) as I truly can’t remember what I’ve said or done most of the time.
  • Have to have simple plots on TV dramas explained to me. Since when did Agatha Christie start writing for Neighbours?
  • Left £50 cash back in Tescos.
  • Next time I visited Tescos I concentrated so hard on not forgetting the cashback that I left my bank card instead – handy.
  • Spatial awareness rather off – I cant park for s**t (no comments about women drivers please!)
  • Texted the wrong person to ‘please pick up some cream for a rash’ (it was drug related rash on my legs just to clarify)
  • Writing this I took a rather ridiculous amount of time looking for the exclamation mark, you may have noticed that I use this rather a lot!!!!!!!!!

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3 Comments to

“I don’t know, did I?”

  1. Avatar September 23rd, 2016 at 6:20 am Emma Says:

    That’s an impressive list Sues 🙂 is this a side effect of the meds?!
  2. Avatar September 24th, 2016 at 8:49 am Susan Cartwright Says:

    Hiya, I have more to add if only I could find the list! Yes it is a side effect as my brain is being rattled a lot with all the meds. Hope you and your family are well? xx
  3. Avatar October 11th, 2016 at 9:30 am Susan Cartwright Says:

    Yes I hope so!

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

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