Still on that boat…

Strawberry blonde in a dizzy world!

Are you having a laugh?

July30

I’ve had the headache from hell for over three weeks now and it is awful. I went to my local surgery to have some ‘safety’ bloods done – yeah that fills you with confidence right? Anyway, I looked so awful that the nurse said I needed to see a Doctor. I explained that I really didn’t think that there would be much that they could do but she insisted and I was right, nothing could be done to help. I’m already on maximum doses of the medications they would put you on for my cervicogenic headache – yeah worked out what it is between two doctors and Google. I then went to the receptionist to book in for my next blood test and she then said I should see one of the doctors as I looked so awful. It’s like busses, you can never get an appointment and then offered two in one day! It was really good that they were trying to help though 🙂

So I’m basically stuck with this headache that isn’t just a headache it’s like the mother of all hangovers. I couldn’t even stand long enough to heat up some food in the microwave the other day as it gets worse the more I stand or move. So I can hardly move my head but on a treatment that makes me sick – hmmmmm life not playing fair at all!

 

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat