Still on that boat…

Strawberry blonde in a dizzy world!

Well of you’re going to do it do it in style!

September25

So, I got to America in one piece. Well, sort of, I feel like I left half of my brain in the washing machine back home but that’s not anything unusual for me these days.

We did it in style starting off in the first class lounge. It would have been more fun if I could have hit the bacon sandwiches and champagne harder but I was too wobbly and was kind of stuck to my seat. Just as well, there could of been a shortage – been gluten, sugar and alcohol free for far to long for all the good it has done me.

My friend had already had a ticket booked in business class and had very kindly insisted to upgrade me once we got to the check in but unfortunately the flight was full. I was fine with that (but was dying a little inside but I put a good a brave face on – I’m very good at that by now). My lovely friend sent be back a glass (well more like a pint) of champagne back and some posh snacks. Oh the looks I got, I felt like a film star that has had her ticket mixed up and was getting special measures. Well, I have become a vey good actress (as have most Lyme sufferers) so I may as well go with it. I quite like the thought of being a diva – bring me more champagne hostess and make sure it’s 8.5 degrees C!

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2 Comments to

“Well of you’re going to do it do it in style!”

  1. Avatar September 26th, 2018 at 9:08 pm Emma Says:

    Have a positive and restful trip Sues, take care x
  2. Avatar October 6th, 2018 at 8:35 pm Susan Cartwright Says:

    Thanks so much Emma xx

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Who am I?

Was – independent, intelligent (with plenty of dizzy moments), successful, busy, funny (depending on how much Prosecco I and the people around me had!), quite stressed out but overall happy, without even realising how lucky I was.

Now  – ? just a mess really! I was diagnosed with Migraine Associated Vertigo (MAV) eight years ago when my life changed dramatically. It’s a variant of migraine that means I feel dizzy and tired nearly all of the time. If I try and do anything ‘normal’ this sparks of vertigo which gradually gets worse and worse until I pass out unless I lie down for hours, sometimes days. What this means is I spend 90% of my time in bed in a quiet dark room. Normal activities like shopping, walking, going anywhere bright or busy, the cinema even visiting friends who have patterned wallpaper or a gravel drive is a nightmare!

I’m continually trying new medications, all of them with quite nasty side effects (worsening of vertigo, weight loss, hair loss and sense of humour loss to name but a few) to try and find the magic one that will work for me. Fingers crossed the one I’m on now will work, time will tell.

A good friend set up this website so I could become a ginger whinger. No I’m kidding, so people can understand what I’m going through and maybe it would help me to have a bit of a rant. I have quite a dark sense of humour, I think that’s the only reason I haven’t gone completely bonkers! I clearly don’t have the most exciting of lives but I live in a small village with some entertaining characters and I’m always having blond moments (I blame the meds but I’ve always been a bit dappy!). Who knows I may even get better, and I can assure you life will be filled with amazing adventures then!

Scrap that! After zillions of Consultants all saying that they know what’s wrong with me and that they can get me better. Endless drugs and procedures I was finally Diagnosed with Chronic Lyme which was great – until I find out that nobody in the UK has a clue how to treat it. That complicates things some what 😉

 

@still_on_that_boat