Still on that boat…

Strawberry blonde in a dizzy world!
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Flower power

October25

I have been busy with my up cycling projects again.

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This old sewing box cost me £15 in ‘bargain corner’ at my favourite charity shop so I have prettied it up and put all my craft bits and bobs in it.

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It has passed the time whilst I wait (for a change!) to see if the antibiotics will do anything. Come on antibiotics hurry up and kick the suspected Lyme diseases’ butt so I can get on with something a little more exciting!

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Oh and yes, something has changed on my site and I can’t figure out how to centre my pictures – computer genius I am not 😉

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Awesome!

October8

My trip to Sardinia for a yoga break was once again brilliant. I’m not sure what my favourite time of day was?

The amazing yoga with a great teacher on a yoga deck overlooking the sea first thing:

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Having a post yoga swim in the sea:

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Chilling out with the girls around the pool or at the beach (we were told off for talking to much – shocking!):

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Hearing (or sometimes saying) ‘is it beer o’clock yet?’ when sitting around the pool:

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The first prosecco at the pool bar in the evening:

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Giggling with good friends at dinner:

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Then repeat the next day. A fabulous break!

It was wonderful to feel more like a normal person for a week, I really did give my abs the biggest work out ever from all the laughing! I’m having another rough time now on more antibiotics for suspected Lyme disease but it’s really helping having such great memories to think about 🙂

Bake Off inspired cherry cake

August18

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Here we go again!

August12

The nerve block was more fun and games (I’m such a lucky girl!). The journey to Liverpool was an absolute pleasure with the usual motorway services with the toilets MILES away topped off nicely by staying at a hotel with the world’s most vertigo unfriendly carpet. It was flippin everywhere. When I realised my room was at the end of the ‘Vertigo Corridor From Hell’ I almost just set up camp where I stood!

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Apparently it can take a couple of weeks to work and it’s now been about that and surprise surprise its made not a jot of difference. I’m also now being treated for suspected Lyme Disease which is just bizarre. I can’t really get my head around how my whole life has been shattered and it could all be down to something as simple as a tick bite – it’s crazy. What’s also nuts is going to the Hospital of Tropical Medicine hoping that you have some nasty infection as anything is preferable to what I have been (unsuccessfully) treated for. I’m so exhausted by all this!

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My sister has now gone back to Australia which is sad. Before she went we had a really fun day at Champneys (cheers Mary and Andrew!). There was no alcohol at the bar (shock horror) so we were a little bit naughty and snuck in the hard stuff and had a rather nice errr ‘detox cocktail’ at lunchtime. Rav from Crime Watch and Strictly Come Dancing was there which was a nice little treat, he so rocked a white towelling robe!

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I had a pedicure which lasted for all of five minutes when I managed to kick my sun lounger – maybe there was a good reason alcohol is not aloud 😉

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We rounded the day off nicely in an establishment that does let you have alcohol, huddled under a umbrella in a thunder storm (possibly not the brightest thing to do). Unfortunately the flash on my phone is so rubbish you can’t see how fab we looked after a day at the spa 😉

 

Tommy time!

August2

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Voila!

July16

Well I made the rather brave (or some would say just plain daft!) decision to cook dinner for my sister and her boyfriend. Did I happen to mention he’s a head chef? After watching my sister and I take about 15 minutes to chop a single onion (wine may have hindered our progress some what!) he helped out. I swear all I did was turn my back for a few seconds and all my prep was done and put into little bowls so even I couldn’t get things to far wrong (or so you’d have thought – don’t ask about the cauliflower bhaji!). I felt like a TV chef it was fab 😉
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Long time no see!

July10

Sorry I’ve been a bit quiet. Unfortunately it’s not because the Botox has performed miracles and I’ve been to busy partying and travelling the world to keep up my blog! To be honest, it’s been a little depressing even contemplating doing my blog as I stupidly envisaged it being a documentation of me gradually improving when the reality is quite the opposite.

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So, I’ve had some highlights – Soph and Hayden’s wedding, my sister and her boyfriend over from Australia, Karl and Alice from New Zealand and the yoga girls coming to stay (More entries to come on those soon!). I’ve not had a very good time since the second round of Botox. It made me so sick I tore a ligament in my spine and had a very fun afternoon passed out on the bathroom floor with my poor mother. I’d collapsed against the door so my mum couldn’t get out to A) turn off dinner that was cooking or B) get any help. It was almost funny. I then spent the next few weeks in (even more of) a drug induced haze struggling somewhat as the only thing that eased the pain (apart from gallons of Deep Heat) was walking. I could only walk a very short distance because the vertigo was so awful so it made for an interesting time. Honestly, someone up there is having a really good laugh!

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So things are gradually returning to baseline and I’m due to have a Greater Occipital Nerve block done at the end of the month – who knows what that will do to me but I guess I just have to keep hoping something positive will eventually happen. I’m due some luck at some point, and yes, I have considered starting to buy lottery tickets.

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I’m very lucky I have such supportive family and friends, they truly are amazing. I tried to make it to the village carnival last weekend and ended up passed out on the floor in a puddle – not my most glamorous moment! Once we’d convinced all the bystanders that I didn’t need the St John’s Ambulance I managed to get myself into a nearby bus shelter. My family had all rallied round at this point and as I couldn’t move far they all joined me in the bus shelter with drinks from the local pub – you have to laugh!

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My sister got caught trying to leave the pub with two pints of IPA and a GnT. When asked where she was going she explained being back in the village she was reliving her youth by getting drunk in the bus shelter. I think they believed her too!

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Thank goodness they help me to see the funny side 😉

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Beautiful

May6

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Farewell old friend

May2

I came to realise spending more money on petrol than on food is rather silly – I don’t even go anywhere! So the time came when I had to say good bye to my fun but rather uneconomical car. It was a sad day but we’d had some fun times 🙂

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I now have a very boring, slow, economical, sensible old car but hey, at least I don’t spend half my life at the petrol pump!

Sign of a good wedding!

April7

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My poor suede shoes 😉

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Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.

 

Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.

 

@still_on_that_boat