Day 16
Feel awful, just want to go to sleep and never wake up again if I’m being totally honest. Just been lying in bed waiting for the hours to pass. It’s so exhausting, It’s like having flu being so drained all the time but without ever having the relief of getting better. So fed up with this crap 🙁
Day 15
I pushed the envelope too far and now it’s shoving me right back! I felt a bit jittery this morning and I put that down to having more energy than usual. I went to my yoga class and really enjoyed it as I felt much stronger. I even met my friend after for a cuppa which was great for a catch up. I then really struggled to get back to the car (parked about 100 meters away) as it felt like the path was moving. So back to the sofa for me, the vertigo’s really hitting back, even popping up the stairs to the loo is quite worrying as I feel really drunk. So hopefully I just overdid it yesterday and if I rest up it will settle over the next couple of days. This illness is such a bitch!
Day 14
I did really well today considering I was bed bound at this stage of the treatment last time. I actually went for what could actually be considered a walk today, okay I had to have a few stops on the way, huffing and puffing like an old granny but it was more a stamina thing than a vertigo thing that stopped me from going furthur.
I was well rewarded after with a ridiculous hot chocolate but it was well deserved and all the more enjoyable for it.
I’m definitely not knocking the human ‘steam in the bag machine’ -Ground control to major Tom!
Day 13
I didn’t sleep well because my aching was keeping me up. The aching and stiffness in my joints was pretty horrible but maybe a good sign that I’m getting a reaction from the treatment that I’m on. I did go to the local to watch the rugby (feeling like I’d taken on the front row myself!), sneaking Alca-seltza into my lyme and soda like a pro. Almost two weeks down.
Day 12
Feeling pretty awful. My body is aching all over, like I’ve run a marathon but I can’t even walk down the shop for a pint of milk! I tried to cheer myself up with a bit of pumpkin calving. I Googled some really impressive ones and felt really inspired:
It took so much energy to just get the top off (without taking a few fingers with it!) I gave up and went for simple.
Had to laugh, my parents have very different ideas for passing the hours. Dads:
Mums:
I think she is slightly overestimating how much energy I have 🙂
Day 11
Still feeling pretty awful. My specialist has advised having a massage once a fortnight to aid my lymphatic system getting rid of the toxins caused by the antibiotics hitting the bugs. I don’t like it as I’ve never been one for massage and it generally makes me feel grotty the next day. It’s not exactly white fluffy dressing gowns and Prosecco unfortunately. I had to bite the bullet today, anyway, I feel so rubbish I probably wont even notice it.
My mother had to drive me as it is not easy to park at the surgery and I’m rather limited in how far I can walk before catastrophe. I thought things couldn’t get worse with her first CD choice:
I was so wrong!
You have to laugh, some days I cant even get far enough to my car to drive it but I don’t qualify for a disabled badge. I don’t really want one, it’s a pride thing, I don’t see myself as disabled, (rather stupidly) still looking at this as slight blip in my health. The ironic thing being if I could actually use a wheelchair I’d be much better off as at least I’d be able to go somewhere once I’d got there. Unfortunately, the motion of the wheelchair leaves me in a total mess after. So as it stands my mobility issues of blacking out after a few metres are not considered disabling and parents’ with children are even ahead of me in the pecking order for parking spaces. I can appreciate the difficulty of having pushchairs but I’d argue they are still rather more mobile than me!
So today has once more been spent on the sofa. Roll on tomorrow 🙂
Day 9
The tinnitus is making me want to gauge my ears out with a wire coat hanger. The nausea is still a bit of a bugger but very surprisingly the vertigo isn’t too bad so I can’t really complain – well, just a little bit! I probably over did it today, I had lunch with my mother which was nice but cut it a bit short due to nausea. After a rest I managed to get to a yoga class in the evening, positioning myself near the bin just in case! Half way through the class I felt too ill to continue and luckily (for me anyway!) a guy did his back in doing weights in the gym, my teacher was pulled out to go and do first aid. Maybe half hour classes are the way forward, thanks muscles 😉
Day 8
Why was I worrying about not feeling totally crap – nutter!?! The head pressure is building today and the tinnitus is driving me nuts. The nausea is manageable with dry crackers and ginger tea but isn’t exactly fun. I have managed to do a bit more sewing and I went for a swim. It was a bit risky going for a swim feeling so dodgy but I had to get off the sofa before I lost my mind. I had to go straight to bed after as swimming as it turned out it wasn’t the best plan, It’s so hard to judge what to do activity wise! One week down 🙂
Hi, My name is Susan and in 2010 I suddenly got very sick with vertigo and extreme fatigue. My life as I knew it changed forever. I had to leave my job as a junior Doctor to move back home with my family as I was unable to look after myself, let alone other people. It took a very long time, about 2644 doctors visits and ALL the tests to be told ‘congratulations, all your results are normal there is nothing wrong with you’, which was the most devastating news of all as there clearly WAS something horribly wrong, we just could not identify it.
Eventually, I was diagnosed with Chronic Lyme Disease which was great news as I finally had a reason to feel so ill. That was until I realised that there is no real recognised treatment and I was once again left to trying to navigate debilitating symptoms alone. More doctors, more tests, protocol after debilitating protocol and plenty of ‘ah ha’ moments later I finally started to heal. It was quite the journey and I have learnt a lot about what treatments are out there, and perhaps more importantly, the body’s amazing capacity to heal. I am now in a position where I want to help others to reclaim their health.
@still_on_that_boat