The seal is still intact on the DVD. I had a really horrible day with lots of crazy symptoms but I did manage to go out for dinner. I am pretty impressed how many gluten free options there are in places. I actually really enjoyed my meal instead of getting food envy. I managed to stuff myself silly as you never know when the nausea will be back and so I need to stock up on reserves. Honestly, I feel like a squirrel packing in as much as possible before the winter but this squirrel doesn’t have a calendar and so is never sure when (or if) it will happen. So, the cartoon lives to see another day 🙂

Today is the first day that I have left the house on my own this year and although I had a hesitant start boy did it feel good!

Needless to say things have been rubbish. I have almost been to frightened to get up from the sofa in case I have a ‘power down’. Going food shopping (when I had enough energy) I had the constant worry of having an episode so I always had someone with me. Not exactly fun times but I have to keep focussing on the end point and keep shoveling the tablets down.

I picked up this DVD for a ‘rainy day’ but I’ve had so many of them I’m waiting for the ‘Mother of All Rainy Days’ to break the seal. Lets hope that the DVD stays in the box for a while 🙂

Well I thought that having to stick this to the front door was a pretty awful point in the treatment:

That was before I passed out onto the floor of my house. Every time I tried to lift my head I passed out again. Fortunately I’d been on the phone to my Mum at the time as I was feeling a bit scared that the sofa was tipping (understandable worry!). Unfortunately I had left the keys in both doors meaning that you can’t get into the house from the outside with the spare key. My poor mother was looking through a crack in the curtains and could see me laying there in the middle of my frontroom. Apparently she even thought of calling the fire brigade in her panic to get into the house. I felt like the floor was the wall and was the right way up if that makes any sense. like those scenes in Batman.

After a while I could crawl to the front door and let my Mum in. I then had to lay in the porch for a long time before I could even think about moving. We had a slight problem with my Mum getting through the child proofing on my medication – oh and tablets are a bugger to take when you can’t move your head. We also had a good laugh that even in the state that I was in I could still manage to talk about clothes! I’m now a tad worried about leaving the house which is understandable as I don’t want to make an idiot of myself. I think I’m just going to have to stop caring about what people who I don’t know think about me. I sooooo need to read this very appropriate Christmas present!

and hope that this Christmas gift is right

Healthy times are due my way…please 🙁

So the humiliation continues. I have found now that my driving skills have seriously deteriorated, my spatial awareness is terrible. We went to the local pub the other night and I drove. When we came home I was really struggling to park on the road outside my house. I have done this a zillion times before. I was back and forth, back and forth, a metre out, on the kerb and then a metre out again. Basically a total disaster for about ten minutes, it’s a straight bit of road! it really exhausted to me and I staggered to my door not used to my high healed boots (kinda a slippers or ugg boats girl at the moment) dropping keys and finally got into the house. The next morning we went to leave the house when the very same man who helped me with the ‘iced over door saga’ strolled over. He said ‘it looked like you’d had a good time last night, had you been to a Christmas do?’ to which I replied ‘no, I’d had two pints of water at the local’ – he must think I’m a total airhead and he’d be about right at the moment!

To add to the humiliation I passed out at my appointment with my naturopath. We then preceded to continue the appointment from the floor – he is a top guy!

Hmmm I have to admit this picture is a slight misrepresentation of how the appointment proceeded to go – not quite so happy or attractive (understatement of the year!) and more sobbing and soggy tissues!!

At the moment I have had so much nausea and vomiting I can’t even try the CBD oil to see if it will help with everything else. I have gone to desperate measures to feel better and nothing is working. I went to a yoga class the other day (highlight of my week!) and I had to dash after twenty minutes. The instructor got hold of my phone number to tell me to have some free sessions as she is feeling bad about it – pah not as bad as me I can tell you!

Hmmmmm just need to be able to actually do yoga I guess?

We made a slight mistake with the Christmas tree, it was so diddy compared to the others we thought it was the one. We got home and then realised it was so massive for my house, we can hardly see the TV but it looks great – I had to go out and buy A LOT of fairy lights mine looked a tad pathetic, they are on there honest!

Happy Christmas every body xx

Yes, another entry to the ‘Stupid Sues’ files. Here we go. I went to get in my car the other morning and found that it had frosted over – to be honest it’s unusual for me to be up early enough to catch the frost. I went to open the door and found that I couldn’t open it. My door had frozen over previously so I kept pulling hoping to eventually break it free from the ice. At this point a neighbour shouted over asking if I was OK. I said that I was having trouble opening the door and did he think hot water would loosen the door enough for me to open it? He kindly came over to help and the pair of us were pulling and pulling at the doors. He then asked me ‘have you unlocked the car?’ I pressed the key and almost died with embarrassment when the doors sprung open. Iced oved floor please swallow me up now!

I redeemed myself putting together my Mum’s exercise bike. It was like souped-up Meccano but with the smallest most undetailed instructions going but I managed it (high-five me!). I’m sure this was quite the point of it though! 😉

I have been advised by my Consultant to take CBD oil (oil containing some of the active chemicals from the Marijuana plant) for my random aches and pains. It sounds nuts but it actually helps with MS, epilepsy, Parkinson’s disease and many other illnesses, although there has not been any big trials done as of yet. The real healing properties are thought to be in compounds found in the entire plant but since it can also cause psychosis (who needs that right!?!) and is illegal here it’s not really an option. The CBD oil may calm my bacteria riddled brain down and give me a friggin break I hope. Well here we go – hmmm must add Wotsits, Doritos and have Domino’s Pizza on speed dial!

just kidding CBD oil doesn’t work like that ?

It was lovely to get all wrapped up and watch the fireworks at my Aunts place with a large glass of prosecco at hand. Although I was embarrassed to find out what a lightweight I’ve become!

Discussing the meaning of life? No more likely how to get me home in a wheelbarrow!

I managed to get out of the house the other day and go to a Caribbean restaurant which was really nice. Unfortunately I was the designated driver as I can’t drink and don’t really feel like it anyway to be honest. It was still fun watching these guys on the 2 for 1 cocktails – funnily enough they just had two each every time so I was glad that they were putting in a good effort.

I was on my peppermint tea and was looking pretty rough (see below if you dare!). For the love of God someone give me the name of a good eye bag concealer.

I’m still having trouble with the random aches and pains. I was filling up a hot water bottle to ease the pain in my back and managed to pour it over my hand instead – how ironic!

Oh, on a positive note I can’t really remember the Girl on the Train now (despite also reading the book) so when it’s played on the TV it will be a real treat 😉

Bad vertigo and nausea – not a happy bunny.

I actually managed to go to the cinema (after a day in bed) the other day. I really worry about the cinema and we had not gone for a very long time. Not only do I have to worry about the nausea (aisle seat) and vertigo (steady escort…as in boyfriend not the paid type!) I just can’t get comfortable on those seats. I wriggle around from about 5 minutes into the film. I have now started to take one of my own cushions in – embarrassing or what?

Well, purely by accident we paid £2.50 extra for deluxe seats – LIFE CHANGING and worth EVERY penny!

Well that’s one less thing to worry about 🙂